Health literacy in patients with pulmonary embolism: development and validation of the HeLP (Health Literacy in Pulmonary Embolism)-Questionnaire

  • Background: Pulmonary embolism (PE) is a common cardiovascular disease and health literacy is necessary to deal with its consequences after the acute event. The aim of this study was to develop and validate a new questionnaire to measure PE-specific health literacy. Methods: A mixed-methods design with qualitative and quantitative elements was used in the development process. A literature review about health literacy concepts and instruments and interviews with patients with PE and clinicians were conducted. Quantitative analyses included factor analyses, item response theory with a graded partial credit model, and reliability analyses in different test and validation samples. Furthermore, convergent and known-groups validity and responsiveness were assessed. Results: The qualitative results supported a concept of PE-related health literacy with four main topics: dealing with PE-related health information, disease management, health-related selfcare, and social support. AnBackground: Pulmonary embolism (PE) is a common cardiovascular disease and health literacy is necessary to deal with its consequences after the acute event. The aim of this study was to develop and validate a new questionnaire to measure PE-specific health literacy. Methods: A mixed-methods design with qualitative and quantitative elements was used in the development process. A literature review about health literacy concepts and instruments and interviews with patients with PE and clinicians were conducted. Quantitative analyses included factor analyses, item response theory with a graded partial credit model, and reliability analyses in different test and validation samples. Furthermore, convergent and known-groups validity and responsiveness were assessed. Results: The qualitative results supported a concept of PE-related health literacy with four main topics: dealing with PE-related health information, disease management, health-related selfcare, and social support. An initial item pool of 91 items was developed. Further interviews and an online survey with patients with PE (n = 1,013) were used to reduce the number of items and to confirm structural validity. Confirmatory factor analyses in the final evaluation study with patients with PE (n = 238) indicated a good model fit of the four-factor structure. The Health Literacy in Pulmonary Embolism (HeLP)-Questionnaire showed good reliability (Cronbach’s alpha: 0.82 to 0.90). All four subscales were responsive toward receiving a brochure with PE-related health information. Conclusion: The newly developed German HeLP Questionnaire comprises 23 items in four domains and showed good psychometric properties. Further evaluation of the questionnaire in different samples of patients with PE is needed.show moreshow less

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Author:Simone Fischer, Anja KalchGND, Constanze KüchlerORCiDGND, Aliscia Rebecca AlbaniGND, Helena BilandzicORCiDGND, Dirk Horenkamp-Sonntag, Thomas M. Berghaus, Christine MeisingerORCiDGND, Inge Kirchberger
URN:urn:nbn:de:bvb:384-opus4-1079911
Frontdoor URLhttps://opus.bibliothek.uni-augsburg.de/opus4/107991
ISSN:2296-2565OPAC
Parent Title (English):Frontiers in Public Health
Publisher:Frontiers Media S.A.
Type:Article
Language:English
Date of first Publication:2023/08/29
Publishing Institution:Universität Augsburg
Release Date:2023/10/10
Tag:health literacy; pulmonary embolism; disease-specific questionnaire; psychometric evaluation; factor analyses; item response theory
Volume:11
First Page:1167499
DOI:https://doi.org/10.3389/fpubh.2023.1167499
Institutes:Philosophisch-Sozialwissenschaftliche Fakultät
Philosophisch-Sozialwissenschaftliche Fakultät / imwk - Institut für Medien, Wissen und Kommunikation
Medizinische Fakultät
Philosophisch-Sozialwissenschaftliche Fakultät / imwk - Institut für Medien, Wissen und Kommunikation / Lehrstuhl für Kommunikationswissenschaft mit Schwerpunkt Rezeption und Wirkung
Medizinische Fakultät / Universitätsklinikum
Medizinische Fakultät / Lehrstuhl für Epidemiologie
Medizinische Fakultät / Lehrstuhl für Innere Medizin mit Schwerpunkt Kardiologie
Nachhaltigkeitsziele
Nachhaltigkeitsziele / Ziel 3 - Gesundheit und Wohlergehen
Dewey Decimal Classification:6 Technik, Medizin, angewandte Wissenschaften / 61 Medizin und Gesundheit / 610 Medizin und Gesundheit
Licence (German):CC-BY 4.0: Creative Commons: Namensnennung (mit Print on Demand)