Disclosing otherness: situated knowledges and the politics of ethnographic approaches to the #WeAreNotWaiting movement in Type 1 Diabetes and beyond

  • In this article, I reflect on my empirical engagement in the global (digital) health movement #WeAreNotWaiting in the context of Type 1 Diabetes. I want to take my relationships and interactions in this community as a starting point to discuss the multifacetedness of doing ethnographic research in health-political activist communities while not being affected by the health conditions the research participants are affected by and not sharing their explicit personal-political aim. Building on Donna Haraway’s conceptualization of situated knowledge and Kim TallBear’s notion of ethics of accountability, I empirically retrace three accounts of disclosing otherness in my empirical engagement that were generative for my understanding of the movement. I suggest that the moments where one needs to explain oneself, where one is met with skepticism, or experiences tensions, might be uncomfortable and challenging but can be generative. To engage with them can contribute to the accountability ofIn this article, I reflect on my empirical engagement in the global (digital) health movement #WeAreNotWaiting in the context of Type 1 Diabetes. I want to take my relationships and interactions in this community as a starting point to discuss the multifacetedness of doing ethnographic research in health-political activist communities while not being affected by the health conditions the research participants are affected by and not sharing their explicit personal-political aim. Building on Donna Haraway’s conceptualization of situated knowledge and Kim TallBear’s notion of ethics of accountability, I empirically retrace three accounts of disclosing otherness in my empirical engagement that were generative for my understanding of the movement. I suggest that the moments where one needs to explain oneself, where one is met with skepticism, or experiences tensions, might be uncomfortable and challenging but can be generative. To engage with them can contribute to the accountability of the ethnographer.show moreshow less

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Metadaten
Author:Bianca JanskyORCiDGND
URN:urn:nbn:de:bvb:384-opus4-1095759
Frontdoor URLhttps://opus.bibliothek.uni-augsburg.de/opus4/109575
ISSN:0891-2416OPAC
ISSN:1552-5414OPAC
Parent Title (English):Journal of Contemporary Ethnography
Publisher:SAGE Publications
Type:Article
Language:English
Date of first Publication:2023/11/03
Publishing Institution:Universität Augsburg
Release Date:2023/11/29
Tag:Urban Studies; Sociology and Political Science; Anthropology; Language and Linguistics
Volume:53
Issue:1
First Page:51
Last Page:73
DOI:https://doi.org/10.1177/08912416231207648
Institutes:Medizinische Fakultät
Medizinische Fakultät / Professur für Ethik der Medizin
Dewey Decimal Classification:6 Technik, Medizin, angewandte Wissenschaften / 61 Medizin und Gesundheit / 610 Medizin und Gesundheit
Licence (German):CC-BY-NC 4.0: Creative Commons: Namensnennung - Nicht kommerziell (mit Print on Demand)