A test of faith? Attitudes of ultraorthodox Jewish parents of children with down syndrome toward prenatal testing

  • The Haredi (ultraorthodox Jewish) community in Israel presents distinct views on disability and prenatal testing compared to the pro-testing attitudes of the Israeli general public. Based on qualitative analysis of semi-structured interviews with Haredi parents of children with Down syndrome, this study explores the interplay between their personal experiences and community norms in the creation of views on disability and pregnancy management. The experiences of life with disability carry varied positive and negative aspects, for both secular and religious parents. However, while this variability sometimes led to re-consideration (for better or worse) of views on disability and prenatal testing among secular parents, we demonstrate that parenting a child with disability did not change the views of Haredi parents regarding the futility of prenatal testing and the value of disability. For them, the Haredi model of disability remained the dominant framework through which life isThe Haredi (ultraorthodox Jewish) community in Israel presents distinct views on disability and prenatal testing compared to the pro-testing attitudes of the Israeli general public. Based on qualitative analysis of semi-structured interviews with Haredi parents of children with Down syndrome, this study explores the interplay between their personal experiences and community norms in the creation of views on disability and pregnancy management. The experiences of life with disability carry varied positive and negative aspects, for both secular and religious parents. However, while this variability sometimes led to re-consideration (for better or worse) of views on disability and prenatal testing among secular parents, we demonstrate that parenting a child with disability did not change the views of Haredi parents regarding the futility of prenatal testing and the value of disability. For them, the Haredi model of disability remained the dominant framework through which life is experienced.show moreshow less

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Metadaten
Author:Tamar Nov-KlaimanORCiDGND, Aviad E. Raz, Yael Hashiloni-Dolev
Frontdoor URLhttps://opus.bibliothek.uni-augsburg.de/opus4/112751
ISSN:0968-7599OPAC
ISSN:1360-0508OPAC
Parent Title (English):Disability & Society
Publisher:Informa UK Limited
Type:Article
Language:English
Year of first Publication:2024
Release Date:2024/04/30
Volume:39
Issue:1
First Page:192
Last Page:212
DOI:https://doi.org/10.1080/09687599.2022.2070059
Institutes:Medizinische Fakultät
Medizinische Fakultät / Professur für Ethik der Medizin
Dewey Decimal Classification:6 Technik, Medizin, angewandte Wissenschaften / 61 Medizin und Gesundheit / 610 Medizin und Gesundheit