EU JOINT ACTION: Integrating palliative care in the EU cancer agenda: insights from JANE-2

  • Background: Palliative care is inconsistently integrated into European cancer care, with fragmentation in provision, accessibility, and education leading to avoidable suffering and inefficient use of healthcare resources. There is a need to improve this through a Europe-wide initiative, the Joint Action on Networks of Expertise on Cancer (JANE-2), which builds on the earlier JANE initiative. Within JANE-2, one dedicated work package-6 (WP6) focuses specifically on palliative care. Methods: JANE-2 spans 42 partners across 26 countries, in a cross-national, co-produced approach. As part of this, palliative care will be systematically appraised, aligned and ultimately transformed through one work package with four distinct tasks including: (1) organisation and delivery, (2) digitalised care pathways with patient-reported outcomes, (3) education and competence frameworks, and (4) indicators for monitoring integration, using a "networks-in-networks" model designed for sustainabilityBackground: Palliative care is inconsistently integrated into European cancer care, with fragmentation in provision, accessibility, and education leading to avoidable suffering and inefficient use of healthcare resources. There is a need to improve this through a Europe-wide initiative, the Joint Action on Networks of Expertise on Cancer (JANE-2), which builds on the earlier JANE initiative. Within JANE-2, one dedicated work package-6 (WP6) focuses specifically on palliative care. Methods: JANE-2 spans 42 partners across 26 countries, in a cross-national, co-produced approach. As part of this, palliative care will be systematically appraised, aligned and ultimately transformed through one work package with four distinct tasks including: (1) organisation and delivery, (2) digitalised care pathways with patient-reported outcomes, (3) education and competence frameworks, and (4) indicators for monitoring integration, using a "networks-in-networks" model designed for sustainability beyond JANE2. Outcomes: These will include scoping reviews, expert consultations, and modular surveys to support cross-country mapping. Conclusions: The palliative care work package within JANE-2 will deliver shared standards, pathways, education, and indicators in a sustainable European Network of Expertise that aims to embed palliative care as an inherent component of cancer care.show moreshow less

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Author:Line Foss, Augusto Caraceni, Carlos Centeno, Greta Chlebopaševienė, Stine N. Clemmensen, Itske Fraterman, Jesús González-Barboteo, Mogens Groenvold, Barry J. A. Laird, Mari Lõhmus, Miguel Mateu-Sanz, Anna Reyners, Eva SchildmannORCiDGND, Marianne Jensen Hjermstad, Stein Kaasa, Johann Ahn, Radu Dragomir, Emanuel José Gouveia, Orsolya Horváth, Yurii Kondratskyi, Sophie MeestersORCiDGND, Andres Morgenstern, Marius Perminas
Frontdoor URLhttps://opus.bibliothek.uni-augsburg.de/opus4/128336
ISSN:0885-3924OPAC
Parent Title (English):Journal of Pain and Symptom Management
Publisher:Elsevier BV
Place of publication:Amsterdam
Type:Article
Language:English
Year of first Publication:2026
Publishing Institution:Universität Augsburg
Release Date:2026/03/02
Note:
Authored by the WP6 Consortium. Please see publisher's website for further details.
DOI:https://doi.org/10.1016/j.jpainsymman.2026.02.009
Institutes:Medizinische Fakultät
Medizinische Fakultät / Universitätsklinikum
Medizinische Fakultät / Lehrstuhl für Palliativmedizin
Dewey Decimal Classification:6 Technik, Medizin, angewandte Wissenschaften / 61 Medizin und Gesundheit / 610 Medizin und Gesundheit
Latest Publications (not yet published in print):Aktuelle Publikationen (noch nicht gedruckt erschienen)
Licence (German):CC-BY 4.0: Creative Commons: Namensnennung