Multi-centric quality analysis of oncological data in FHIR

  • Ensuring the reliability and impact of data-driven research requires high-quality data. The more complex the source system and data processing pipelines are, the higher the risk of poor data quality (DQ) during analysis, which in turn compromises the research outcomes. Even for well-structured and standardized data, such as the oncological standardized dataset (oBDS), medical research projects must assess DQ to ensure the reliability of their results. This study assesses the quality of the oncological standardized dataset mapped to FHIR resources across six German university hospitals. Automated DQ checks using Pathling and Great Expectations were implemented on the FHIR resources to evaluate key dimensions of DQ. It demonstrates that DQ varies across data sources, indicating that high DQ cannot be assumed to be uniform even if the dataset is standardized. The results of this assessment will be integrated into the Real World Data Platform of the Bavarian Cancer Research Center (BZKF),Ensuring the reliability and impact of data-driven research requires high-quality data. The more complex the source system and data processing pipelines are, the higher the risk of poor data quality (DQ) during analysis, which in turn compromises the research outcomes. Even for well-structured and standardized data, such as the oncological standardized dataset (oBDS), medical research projects must assess DQ to ensure the reliability of their results. This study assesses the quality of the oncological standardized dataset mapped to FHIR resources across six German university hospitals. Automated DQ checks using Pathling and Great Expectations were implemented on the FHIR resources to evaluate key dimensions of DQ. It demonstrates that DQ varies across data sources, indicating that high DQ cannot be assumed to be uniform even if the dataset is standardized. The results of this assessment will be integrated into the Real World Data Platform of the Bavarian Cancer Research Center (BZKF), enhancing its ability to provide researchers with high-quality oncological data for scientific studies.…show moreshow less

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Metadaten
Author:Clara Fischer, Christian Gulden, Dorian QuellORCiD, Jasmin Ziegler, Dirk Hellwig, Thomas Ganslandt, Tobias Pukrop, Peter Pallaoro
URN:urn:nbn:de:bvb:384-opus4-1306119
Frontdoor URLhttps://opus.bibliothek.uni-augsburg.de/opus4/130611
ISBN:9781643686615OPAC
ISSN:0926-9630OPAC
ISSN:1879-8365OPAC
Parent Title (English):Opening the personal gate between technology and health care: proceedings of MIE 2026
Publisher:IOS Press
Place of publication:Amsterdam
Editor:Mauro Giacomini, Jaime Delgado, Theodoros N. Arvanitis, Elisavet Andrikopoulou, Arriel Benis, Gabriella Balestra, Riccardo Bellazzi, Parisis Gallos, Roberto Gatta, Daniele Roberto Giacobbe, Noemi Giordano, Maria Hägglund, Lars Lindsköld, Lenka Lhotska, Sara Marceglia, Enea Parimbelli, Lucia Sacchi, Paolo Soda, Lăcrămioara Stoicu-Tivadar, Pierangelo Veltri, Patrizia Vizza
Type:Conference Proceeding
Language:English
Year of first Publication:2026
Publishing Institution:Universität Augsburg
Release Date:2026/06/17
First Page:1257
Last Page:1261
Series:Studies in Health Technology and Informatics ; 336
DOI:https://doi.org/10.3233/shti260400
Institutes:Medizinische Fakultät
Medizinische Fakultät / Universitätsklinikum
Medizinische Fakultät / Lehrstuhl für Datenmanagement und Clinical Decision Support
Dewey Decimal Classification:6 Technik, Medizin, angewandte Wissenschaften / 61 Medizin und Gesundheit / 610 Medizin und Gesundheit
Licence (German):CC-BY-NC 4.0: Creative Commons: Namensnennung - Nicht kommerziell