Communicative care in online forums: how burdened informal caregivers seek mediated social support

  • Health care in aging societies increasingly demands that relatives, partners, or friends provide informal care for loved ones at their end of life. Yet, being an informal caregiver involves significant health threats caused by so-called caregiver burden. To cope with the broad spectrum of challenges, informal caregivers seek social support in the care relationship network emerging around a (future) patient. However, obtaining social support is not limited to offline contexts. Members of online communities also provide experiential knowledge and social support. To explore how informal caregivers seek and provide social support online and how this is interrelated with their care relationship networks, we conducted a qualitative content analysis of 75 threads about advance care planning from German online forums (2003–2017). Our findings show that informal caregivers rely on what we conclusively coined communicative care (i.e., informational and emotional support in burdensome careHealth care in aging societies increasingly demands that relatives, partners, or friends provide informal care for loved ones at their end of life. Yet, being an informal caregiver involves significant health threats caused by so-called caregiver burden. To cope with the broad spectrum of challenges, informal caregivers seek social support in the care relationship network emerging around a (future) patient. However, obtaining social support is not limited to offline contexts. Members of online communities also provide experiential knowledge and social support. To explore how informal caregivers seek and provide social support online and how this is interrelated with their care relationship networks, we conducted a qualitative content analysis of 75 threads about advance care planning from German online forums (2003–2017). Our findings show that informal caregivers rely on what we conclusively coined communicative care (i.e., informational and emotional support in burdensome care situations), often in response to impaired offline relationships within care relationship networks.show moreshow less

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Metadaten
Author:M. Menke, Anna J. M. WagnerGND, Susanne KinnebrockORCiDGND
URN:urn:nbn:de:bvb:384-opus4-765479
Frontdoor URLhttps://opus.bibliothek.uni-augsburg.de/opus4/76547
URL:https://ijoc.org/index.php/ijoc/article/view/12479
ISSN:1932-8036OPAC
Parent Title (English):International Journal of Communication
Publisher:USC Annenberg Press
Place of publication:Los Angeles
Type:Article
Language:English
Year of first Publication:2020
Publishing Institution:Universität Augsburg
Release Date:2020/06/04
Volume:14
First Page:1662
Last Page:1682
Institutes:Philosophisch-Sozialwissenschaftliche Fakultät
Philosophisch-Sozialwissenschaftliche Fakultät / imwk - Institut für Medien, Wissen und Kommunikation
Philosophisch-Sozialwissenschaftliche Fakultät / imwk - Institut für Medien, Wissen und Kommunikation / Professur für Kommunikationswissenschaft mit Schwerpunkt Öffentliche Kommunikation
Dewey Decimal Classification:3 Sozialwissenschaften / 38 Handel, Kommunikation, Verkehr / 380 Handel, Kommunikation, Verkehr
Licence (German):CC-BY-NC-ND 4.0: Creative Commons: Namensnennung - Nicht kommerziell - Keine Bearbeitung (mit Print on Demand)